“DOWN SYNDROME CAUSES SUFFERING”

“DOWN SYNDROME CAUSES SUFFERING”, a headline reads. When I look at my beautiful two daughters I know this is a blatant lie. Politicians, medical professionals and industry are cultivating fear to market tests that continue to harm the Down syndrome community.

I dedicate my first article to my beautiful daughters April and Hazel. ‘May you grow old in a world where one day, everyone is wanted for the person who they are.’

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An inconvenient truth: people with Down syndrome are very happy being themselves.

If you asked my daughters April and Hazel what life is like (with Down syndrome), they would probably give you their undivided attention for a few moments. Hazel would likely start telling you about her friends in school, her little brother Olav, her favorite foods and people in the world (babies). The story might get increasingly hard to follow and likely end in laughter and a high five. April will gaze at you solemnly from behind her glasses. Searching her brain for the proper words to express her feelings, she will be pensive for a while as in meditation. You will start to notice the freckles on her cheeks and tiny nose. Then, as she delicately wraps her arms around your shoulders, a smile will radiate like a ray of sunshine from behind that earnest look.

My daughters don’t suffer because they have an extra chromosome. Sure the road to fluent speech, flawless writing, and coordinated bicycling is often filled with obstacles, but they don’t let it ruin their day, much less their lives. They are consumed with more important stuff like Saturdays’ dance recital or Sundays’ soccer game. Of course, like any kid, mine can drive a mother insane. Hazel can be stubborn as a mule and April can take an hour to get dressed. But they also have the ability to simply accept their flaws and those of others without judgment and to fully enjoy life. In my opinion, that makes my daughters perfect.

For those who hide behind the noble phrase that ‘prenatal selection of babies with Down syndrome is an act of love’ I would like to throw this inconvenient truth on the table: people with Down syndrome are very happy being themselves. In fact, research on a population shows people with Down syndrome and their families rate life above average. It is the outside community that judges their lives poorly.

A few decades ago Down syndrome was considered a life limiting condition and people with Down syndrome were often housed in institutions. Many were in poor health, had limited self-care and social skills, couldn’t read, and died young. It was thought their problems were caused by their DNA and unavoidable. This offered justification for some to offer prenatal screening en selecting Down syndrome to women who were considered at an ‘increased risk’.

         Down syndrome could be considered an ‘acceptable genetic variation’.

Social and medical advances have profoundly changed what it means to live with Down syndrome and other disabilities since then. Today people with Down syndrome are living longer and healthier lives and it seems clear they were limited at least as much by institutionalization, low expectations, lack of education and poor health care as by their DNA. They are increasingly finishing high school, living more independently and holding jobs. In fact, by usual medical definitions and standards, Down syndrome cannot be considered a ‘serious condition’. Think average IQ, life expectancy and other life limiting factors. In today’s framework, Down syndrome could be considered an ‘acceptable genetic variation’.

Rather than discussing ending prenatal screening and selection for Down syndrome, the opposite is happening: from technologically limited tests offered to few, prenatal screening is now routinely offered to all women in the United States and abroad while advanced genetic technology is introduced. Misperception and outright denial of the advances made for this group of people sharing similar physical characteristics abounds in media and medical ‘opinions’. From assumptions about financial dependence, low earning power and generating suffering. By targeting a portion of society (Down syndrome) for elimination it creates and reinforces stubborn outdated stereotyping in society.

If we, as a modern society, value the right to be ourselves, un-judged and free to make our own choices, we should wish the same freedom and rights for our off-spring.

My daughters are not a mistake or a reflection of my personal choice but full-fledged persons and a crucial part of society. They may not become the first female president of the United States (but who will?), it doesn’t mean they have other, important, talents. So often are people with Down syndrome accredited with the ability to be open, accept life, live in the moment and to spread love, simplicity and joy. In fact, people with Down syndrome, as a group, were nominated for the 2014 Public Peace Prize for their ‘real ability to diffuse peace around them’.  These human traits are needed more, rather than less, in today’s fast paced, money and self-centered society.

Eliminating people with Down syndrome from society doesn’t say anything about their inherent worth. It says everything about societies inability to appreciate or accept human differences as part of the whole.

“We all need to feel wanted for the person that we are. So take good care of each other” Fred Penner, Canadian Children’s music performer sings. That’s the message we should pass on to our children.

About the author: Renate Lindeman is a Mother of two children with Down syndrome, Writer, Disability activist, A representative for Saving Down syndrome and spokesperson for Downpride. Renate is the former president of the NS Down syndrome society.

 

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Down syndrome and prenatal screening: 4 myths debunked

SDS-announcement

By Renate Lindeman, Downpride for Saving Down syndrome

You have a child, a brother, sister, loved one with Down syndrome. You love this person with all your heart.  You love their purity, the openness, the talent to be in the moment, the ability to accept flaws in others and still enjoy life. You love how this person spreads simplicity and love. Loving someone with Down syndrome may not have made life easier, but certainly has made it more worthwhile.

Were you ever confronted with prenatal screening and selection for Down syndrome when you felt marginalised? Were you offended by negative, outdated stereotyping in the media, discriminatory language used by medical professionals or were you in a tense discussion with colleagues, friends or relatives?

You KNOW why people with Down syndrome belong in society. You FEEL we are losing our humanity by selectively eliminating people with Down syndrome from our lives. But the promise of prenatal (dna) screening has been so slickly marketed and it is so easily accepted by society as a ‘right’, a ‘freedom’, a çhoice’, a ‘guarantee’, that you have found yourself  lost for words?

Saving Down syndrome is proud to bring you a series of articles debunking the 4 most common myths surrounding Down syndrome, prenatal screening and selection, so you will never be lost for words again.

Mark your agenda, read, share, convince and save our future generation with Down syndrome.

August 12th, 2015              Myth 1: Down syndrome is a serious condition that causes suffering

August 19th, 2015              Myth 2: Prenatal screening & selection for DS is a woman’s right and a free choice

August 26th, 2015              Myth 3: Genetic screening is not about money, but about our well-being

September 2nd , 2015     Myth 4: Darwin was right: health, development and happiness are set in stone in our genes.

NIPT in Nederlands Volksgezondheidsprogramma ter discussie in Washington Post

WP

Down syndrome screening isn’t about public health. It’s about eliminating a group of people.

June 16 at 6:00 AM

Renate Lindeman is the spokesperson for Dutch parent group Downpride. She lives in the Netherlands.
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Upon delivering my first child 11 years ago, I heard the words “Down syndrome,” and my world collapsed. Visions of children sitting passively in a corner watching life go by, not participating, kept me awake those first nights as a mom.

It didn’t take me long, though, to figure out that my ideas were based on negative, outdated information that had nothing to do with the reality of life with Down syndrome today. My daughter April is an active, outgoing girl. She’s my nature child, wildly passionate about anything with four legs. Although April uses few words, she’s a master communicator. Through her, I’ve learned that Down syndrome is not the scary, terrible condition it’s made out to be.

Read more….

 

B R E A K I N G N E W S : we reached 40,000 signatures!

fireworksThe Dutch petition against the implementation of the Nipt as routine screening for Down syndrome to enable selection under public healthcare has received 40,000 signatures. This means it has to be discussed in Dutch parliament as a citizen initiative.

Shareholders pay attention! We will continue and broaden our fight against prenatal discrimination and the de-selection of people with Down syndrome disguised as a (public) health care program.

Ps. This post is written in English to make it easier to spread the news and celebrate our victory that is the result of a long awareness campaign. Downpride promotes the use of genetic technology to enhance quality of life and enable treatment, not to systematically de-select groups of people from our lives and communities under the false pretence of women’s choices and healthcare. Please feel free to share the news…